Our Hlhs Journey

Time to see the ward  So the weeks have been flying by, it feels as if we haven't had much time to prepare our self's for how things are going to be different, and different as in my girls where set straight on me after birth what way is it going to be with him? Will we get to hold him for long? Will our girls get too see him? There's still so meny questions and answers we need to know. Doesn't feel that long ago we had just found out and now we are in single figures for count down. i can't believe it. Got a date that Edith can show us round the ICU, maternity and the Clarke clinic, all the places he will be cared for, and i cant wait too see it, just so we can get a feel for it all. sorta get a jist on how and where he will be getting treatment, feeling so much more real and i wonder to myself am i ready? I'm going to have to be. 23rd August weather has taken a turn, getting cooler at nights and mornings, summer is nearly over. I cant wait to have that au...

6th August Got my antenatal diabetes clinic today, will see the midwifes, baby doctor and a dietitian. Was sat for ages in the hospital, everyone was there from last week and the midwife was the first one i seen. Took my blood pressure, checked my urine and went threw who i was too see next. So next on the list was the dietitian she went threw my eating and said that i will need insulin for after my breakfast as my bloods where at the highest then and out of target. Went threw a new diet plan and she helped me write out when to eat my carbs and how meny to have. Was finished in about 20 minutes with her and next step was the baby doctor to have a growth scan for their records to make sure the wee man isn't growing to big. While waiting i had some lunch as i was starving, with this diabetes I've been eating more regularly which seems to be doing me good as i don't need the urge to binge eat then. As anyone knows with kids it's hard to get time to eat regularly and ma...

20th July We are seeing Dr Sands again today for another heart scan. At least this time we know what to expect, and fingers crossed all is good. Been on a high from we had the 4D scan.  Feels weird having all these scans, but I'm glad they are keeping a close eye. So its our time to go in for our scan. Stuart and I are nervous (of course) but we are getting used to these. Dr Sands gets me up on the chair, get the lovely sticky jelly on and there he is, our wee fighter. Jumping about and Dr Sands can barely see him until he calms down. Made us laugh. He checked for any leaks as if he had a leak he wouldn't of been able to have surgery and wouldn't be able to live, but thank god there was none. He's all happy with how it looks got a better look at his wee valves and he measured them. So we got good news for all its worth, yes he still has the Hlhs but as far as it can it looks as good as i can do.  23rd July I had to fast the whole night from 10.00pm and ...

Birthday scan  After seeing that he was growing i said to Stuart that i wanna enjoy my pregnancy like any other time or anyone else, so i booked a 4D scan for my birthday as i never got one with the girls it was a first. Being the person i am i think of every outcome before it happens and think of the negatives and positives so having the 4D pictures will be something we have of him incase things don't work out. Not that i think they wont as our man is a fighter but its something you have to do when having a child like our little man. just the same way i have done up his room and have everything you normally do have in for a baby coming home. Edith has been ringing and checking on us nearly every week which is amazing, it reassures me that our man is going to be in good hands and that Stuart and I don't need to worry about things like getting flights sorted or hotel rooms as the amazing charity Children's heartbeat trust is dealing with all that with Edith. It takes a bi...

The day after Its a Saturday, we didn't have a good sleep. Been up most the night trying to get our heads around the news. Started the day as normal as we could for our girls, we aren't going to tell them until we know more about it and figure out how to do it. How do you tell your daughters that their baby brother is sick and might not make it? So breakfast was done, we tided up a bit as Stuarts mum and dad where coming down to see us. Got us and the girls washed and dressed, then Stuart went to get his mum and dad. Once they were in and settled with a cuppa we talked about things, as there is family history with Chd and they have been threw it before they knew where we should start. We talked for hours, and before we knew it, it was dinner time and they had to go. After they left Edith our heart nurse rang me. She asked how did our night go and had we told family. I didn't really know what to ask her as we had all this information and didn't know what it meant. S...

20 week scan  22nd May was our 1st 20 week scan, the day dragged by. The appointment wasn't until 3.20pm and the time dragged by. Kids where in school and i had to occupy myself until the time was near, so went into town had a look at few baby things then it was time to pick kids up. So brought them to my granny's for a bit as she watched them for me. Then got to the hospital just in time as the car park was full. Went inside and waited our turn, it wasn't that busy so didn't wait long, a middle aged lady done our scan, she was very nice. Asked all the usual questions and then i got up on the chair and they started. They done his head size and checked all his insides then onto the heart. I couldn't get over how big he'd grew from the gender scan. She took her while around his heart i started to panic, time went so slow all i could do was lie there and hope nothing was wrong. She was then done and asked me to sit up, she said that he was lying in a awkward po...

The wedding  The Mr and I have just had a amazing wedding, was as every girl wants, the most special day of her life, i had my dream dress, make-up was on point, hair was perfect, it stayed in the whole day. I was so lucky to be able to share it with my two daughters as well. They had beautiful dresses on with fluffy shawls, Didn't really have a theme just a colour, it was navy blue and blush pink. (my dress was blush pink so i had to add it in) i had one bridesmaid as it was easier. she was literally the best as she wore what i said and helped me get into my dress and figure out how to pee. My besties where there, Sarah and Stacy, and they were amazing, as always. Helped me pee once my bridesmaid helped my mum look after the girls, i mean seen every inch of me. (long story but it involves knickers being whipped off for better comfort) :D  Everyone had food, drink (plenty of it) and a good dance. I was a bit worse for wear the day after. :D  Moving house A few mo...