Day One!

5th October 2018

First offical day in birmingham, sleep was awful. When we arrived at the hospital last night Noah was took straight to his bed and had all the checks done. His weight, length, head measured, blood took, and swabs took. All to make sure he had no infecion markers and also for his chart. The nuses seen we where draind it was about 8pm and we had traveled god knows how meny miles birmigham childrens hospital. So they said one could stay in the hospital or both could go to hotel and rest up. We decided to go to hotel. We werent going to be any good in the mess we where in. So got Noah settled in his tiny bed and even seen him open an eye. It was amazing and to top it off they said we could have cuddles. So we walked about to find this hotel which was only round the corner from the hospital, so it was great to know we werent far. Obviously as soon as we got up we went to get breakfast so we could just sit with the wee man all morning, then headed to the hospital. We got in and he had a wash, smelling all nice and fresh, having chats with the nurses learning abit about what this operation was supposed too do. As Noah was a heart baby I was told breast milk will be best, which i was going to do anyway as i never done it with my girls but wanted to this time as i knew he would be our last. So the nurse showed me the breast pumping area and showed me how to use the mechine and where to get bottles and steralising kits. Of course if i had my own machine i was allowed to pump by his bed, but i didnt it was the last thing i thought to buy. My first go i was so happy with. I had gotten loads and felt amazing that i was going to able to give him this milk, but he was still nil by mouth as his saturations where to high, they thought he might develop wet lung. So his operation was set for tomorrow. The man to do his operation came to talk to us. He went over Noahs concent form and the side effects of what could happen and what his percentage of life would be after the operation. It was pretty high its an 85% chance of life and there was a side effect that only 5% of babies get, so i sighned and hugged Noah so tight. I litterly held him all day bar the times Stuart held him as well. We got loads of photos and a lovely video of him trying to open his eyes. The day flew by, i barely seen it come in. It was coming up to 9pm and we had word that we had our room in ronald mcdonald house so Stuart went and got our cases out of the hotel and brought them to ronald mcdonald house and signed all the papers.
Stuart came back for me and we go Noah settled into bed. Give him plenty of kisses and we left the hospital. Ronald McDonald house was right next to the hotel so we where still 2 minute walk from the hospital. We set our stuff up got washed and ready for bed, it was going to be a long day ahead of us tomorrow, his operation was ment to last 6-8hours.



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